Showing posts with label sex and the disabled. Show all posts
Showing posts with label sex and the disabled. Show all posts

Thursday, April 21, 2011

Belle de Jour on Sex and the Disabled

As a physically disabled woman, I know first-hand how invisible we are within the culture when it comes to meeting or even discussing our sexual needs.

I have blogged about my own situation extensively, that is why it was so heartening to read a wonderful and insightful post by Dr. Brooke Magnanti, the real woman behind award-winning erotic U.K. author Belle de Jour.

The post appeared on Brooke's new blog, Sexonomics, which launched earlier this month.

Brooke writes that many clients (I assume women as well as men) who frequent prostitutes have various types of disabilities. Sex workers provide these disabled people with a level of unconditional acceptance and lack of judgment little experienced in the "real" world. They have also learned the requisite skills to provide each client with the maximum pleasure possible.

I cannot tell you how important talking openly and honestly about this topic is. It is also incredibly freeing to be able to acknowledge that I remain a sexual being despite my disability. Bravo to sex workers who understand that, too bad that information has not percolated up to the general population!

Brooke has a unique and important voice that should be taken seriously about many topics that happen to include sex work and sex workers.

In 2009, Brooke revealed her identity after a newspaper was about to disclose it without her permission. Brooke, formerly of Bristol, England, was a noted scientist whose specialist areas were developmental neurotoxicology and cancer epidemiology. She has a PhD in informatics, epidemiology and forensic science and had worked at the Bristol Initiative for Research of Child Health as part of a team that researched the potential effects on babies of their mothers' exposure to toxic chemicals.

But, from 2003 to late 2004, Brooke worked as a high-class call girl for a London escort service. She has written an award-winning blog and several bestselling books based on her experiences as a sex worker. Her writing also formed the basis of the TV series Secret Diary of a Call Girl on Showtime, starring Billie Piper in the title role of "Belle."

Please read this great post in full below, or visit Brooke's new blogsite:

WEDNESDAY, 20 APRIL 201

Sexual Ability


One of the more common questions I am asked as an ex-sex worker is "what sort of a man uses prostitutes"? The answer, if I'm feeling flippant? "All of them."

The reality is that while sex workers can (and we certainly do) have a laugh among ourselves about certain annoying client 'types', it's really no different from a group of friends laughing about non-paid dates. Sex work literally does take all kinds.

One of the most frustrating stereotypes is that of the faceless, nameless, conscience-less "John" who is somehow both ubiquitous (he'd have to be, to be supporting the fictional 80,000-woman-a-year forced sex trade) and at the same time, not a person anyone will admit to having met. Because we'd hate to think people we know bought sex, wouldn't we? And yet, of course they do!

Anyway. One of the best tools to challenging this assumption is asking those who stereotype clients: what about disabled people?

There are all kinds of disabilities, and these have all kind of effects on the sexual lives of people. Some people experience varying degrees of difficulty; others make use of mating-and-datingresources on the internet. Some blog about the ups and downswith sensitivity and eloquence. There are great how-to guidesabout the mechanics of wheelchair sex on the web. There's all manner of great stuff at Outsiders. And of course there is the legendary Bob Flanagan.

But the truth is, even with help, guidance, and guides, it's just not always easy. And so disabled clients are a significant part of the client base for sex workers. If you have been a sex worker for any length of time, you have had a disabled client. And they have probably made you see things somewhat differently. Now, disabled people are not the majority of most sex workers' clients, but they're a significant group.

It's well-known what the effects of denying human touch are to babies and children, but few people consider the effects on adults. In my opinion, touch is a basic human need... so basic, it might as well be at the base of Maslow's hierarchy alongside sleep, food, and all the other physiological needs.

The environment in which most of us operate is almost callously unable to provide this need to those who don't easily fit in physically. Added to which, many adults with disabilities live at home with family members, which can make it difficult to be seen as a sexual adult. Even if you're not the most touchy-feely person, you can probably appreciate how even little things like being a different height to everyone else would have a knock-on result to, say, getting hugs. People who like hugs can usually get them. If they're standing face-to-face with others. Or if their limbs are fully mobile. Or if they have all their limbs.

And for people whose mobility is seriously limited, the most intense touch they might get in a day could be a carer or nurse changing their clothes. That is just not on. Restrictive, sense-deprived environments create knock-on effects for physical and psychological well-being. Here's a 1957 article describing early experiment in limiting senses and mobility, and the effects.

Over time, I came to see sex work as a kind of social service; many others do too. Because access to touch, to pleasure and yes — to sex — is something we regard as natural and accessible to everyone. Even to those without money, without jobs, without rights. And yet there are people in our rich, employed, democratic society who struggle to scratch this basic itch. Fulfilling this need as a paid sex worker is not about pity - it's about providing a basic service. Groups like TLC Trust openly acknowledge this reality.

With constant challenges to legal sex work in the UK (especially in Scotland, where I live), I can't help but wonder if the trendy Swedish model of criminalising clients would actually have a knock-on effect of targeting disabled clients. Law enforcement shows a disinclination to pursue difficult criminals in favour of nabbing easy ones. It feels inevitable that someone is going to start "juking the stats"* to make it look like "sex criminals" are being rounded up in unprecedented numbers. Who are those people going to be? The ones who are easiest to find and catch, of course.

A lot of folks point to the Swedish laws that criminalise clients as if they are some sort of panacaea, in spite of criticism of their actual effectiveness. And they defend them using ideology alone: invoking a world in which all who pay for sex are able-bodied, wealthy, and male. A world in which all sex workers are disadvantaged, poor, and female.

The myths perpetrated by opponents of sex work assume that men always have more power than women, and that only cisgender, heterosexual people are involved. It's not true.

It's not a realistic view of the diversity of what goes on between sex workers and clients. Passing laws based on the narrowest and most stereotypical of assumptions will surely become just one more example of bad law.

* - Don't get me wrong, I'm a fan of statistics. But I'm also a fan of transparency in statistics... making it clear exactly what collection and analysis methodology has been used to draw which conclusions. Part of the point of the scientific method is to put it all out there so the accuracy of your results can be tested.

This post actually came from a Twitter discussion with another blogger about something else entirely — will get to writing about prostate massage another time!"

Posted by Belle de Jour at 05:20

If you have any interest in thoughtful discussions about sex-related and scientific topics, I urge you to follow Brooke's blog. She is a unique woman, and an equally unique writer who should NOT be missed.

Brooke's books include: Belle de Jour’s Guide to Men, 2009; Belle’s Best Bits, 2009; The Intimate Adventures of a London Call Girl, September 2005; The Further Adventures of a London Call Girl, May 2007; and Playing the Game, June 2009.

Each one is well-worth reading and re–reading, you can trust me! You can find all of her books at the U.K.’s largest independent bookseller, Waterstones.

Also check out Brooke's op-ed articles on a variety of topics including reforming libel law in the UK, as well as the importance of ensuring the rights of sex workers.

— The Curator

Sunday, October 17, 2010

Project: D—E—S—I—R—E!

I’m old enough and motivated enough to be really good at sex.

I know the subtle, and not so subtle, nuances required to consistently give and receive enormous pleasure. I’m not bragging, it just happens when you age – and provided that you care to learn. I have always cared to learn. That’s why these last few weeks have been especially brutal.

As regular readers know, sex has been saving my life – or more precisely, has helped me decide to hold onto it for as long as I can.

I have Lupus, which I refer to as “Mr. Wolf,” because lupus is the Latin word for wolf. I have the most serious form of the disease, Systemic Lupus Erythematosus (pronounced: er-uh-thee-muh-toe-sus), also called SLE. (Visit the Lupus Foundation of America America for more information.)

SLE is an autoimmune disease. As such, it is characterized by a malfunction of the immune system. In these types of diseases, the immune system cannot distinguish between the body’s own cells and tissues and that of ‘foreign’ matter. So, rather than simply producing antibodies to attack invading viruses, bacteria or other similar foreign substances, my immune system creates auto-antibodies that attack my body’s own cells and/or tissues. It causes a great deal of pain, stiffness, and I’m losing my ability to walk, and to use the fingers. It also often makes me really exhausted, frequently feeling like I have the flu. And at the end of it all, is the end of it all, as it’s eventually fatal.

Recently, Mr. Wolf has been really having his way with me – and not in the good way, either. (Ironically, October is Lupus Awareness Month. I am soooo very aware – but others need to become aware, too. Research for this disease needs funding, duh!)

During the current onslaught, I blogged about having had a sudden, horrible realization: I could no longer truly remember what it felt like to be well. Oh, I had memories of being very active, athletic and whole, but they were no longer sense memories. It was as if that part of my life was so insubstantial it had been absorbed into the unreality of dreams.

That’s why sex has been so very important. When I’m having sex, I am no longer disabled. The pain and misery that has been Mr. Wolf’s calling card transcends into pleasure. Touch and intimacy has been my link to life, and to the divine. In those moments, I am my true self again. Not a disabled person on her way out, but a vibrant woman who was put on this planet for some purpose beyond her finite understanding. (I have always lived my life as a sex-positive person, but if I hadn’t, Mr. Wolf would have converted me at first orgasm!)

To say that it’s not easy, emotionally or physically, to have a consistently satisfying sex life when you’re disabled, suffering from an acute disease or illness, is an enormous understatement. I worked really hard at overcoming and/or coping with my physical limitations to be truly, satisfyingly active and intimate; to re-build my core sexuality from the ground up, as it were. I was convinced that by doing that, I would establish and be able to maintain a razor thin edge of stability. My goal was not to perform sexually as I had before since that would be impossible, but to re-invent my intimate life; to re-imagine myself and the glorious, rich possibilities that only sexuality offers.

Libido had never been my issue, and I have always climaxed easily, but it was the mechanics of the thing – the how to, given my physical limitations. I may not be able to stop the constant pain/fatigue, walk much at all, or move my hands very well anymore, but I can still orgasm, damn it! After a lot of fun, fun, fun trial and fun, fun, fun error (don’t you just hate having to try, try and try again when it comes to sex!?) I re-established a vigorous sex life. Did it look like it did before? No. Was it satisfying? Hell yes!

I bet you can guess where this post is headed. Several weeks ago, I began reducing the number of my intimate encounters. Despite Mr. Wolf, I had been able to have sex several times each week – a number that even many able-bodied women can’t consistently manage.

At first, I thought it anomalous, but it wasn’t. The Lupus had worsened when I was forced off an important bio-medication for financial reasons related to my idiotic health insurance. I have resumed the med, but have not stabilized, and my libido is now definitely M.I.A. Apparently, it’s the side-effects of resuming the medication, as well as Mr. Wolf strengthening.

It may take longer than initially thought to get through the side-effects of the drug. I’d been on it a decade and off for only about three months. When I first began it, it was two months before the side-effects eased. Now, I’m 10 years older and the disease is much worse, so the doctor just told me that it may be closer to four months before the side-effects completely end, and two months beyond that until its benefits fully kick in! She does not know if, when the drug is finally good and truly in my cells doing its thing, Mr. Wolf will give up some of the ground he gained when I off the bio-medication, or if his aggressive presence is permanent.

[Above: Eros Sleeping!]

O-K then! I prefer to believe that I will be able to make up the ground, and will eventually send Mr. Wolf packing to a distant hotel (he always travels top drawer you know, so no motel for him!) So what happens to my sex life in the mean time, doc? How can I reclaim desire when I can barely stagger to the grocery store for food? More importantly, if I have to wait it all out before I can again be sexually active – or even want to be sexually active – what will that do to my psychological/emotional state? Should I try to re-invent myself yet again and attempt to establish a sense of well-being, a desire to stay alive and be connected to the divine without using sex at all as a significant means to achieve that?

Truthfully, I just do not know how to do that. I’ve agonized these past weeks until my puzzler has broken. Well, to hell with it! I will not abandon who I am. I WILL NOT! I will instead launch Project: Desire. I will try everything I can to add a bit of zing back into my life. It may not lead to full-blown sex, but some desire, and sensuality? I can do that, you bet I can.

So, Mr. Wolf, I am putting you on notice: I hereby refuse to allow you to turn me into a non-sexual blob of flesh again. NOT EVER AGAIN! I don’t care how long it takes, or even how I will manage it, but mark my words, I shall be a sexual human being again, because that is simply who I am.

I said this once before, but apparently Mr. Wolf thought I wasn’t serious. I am: Sex doesn’t just promote my overall health, it promotes the very breath of my life!


— The Curator

Wednesday, June 23, 2010

My Sex Life as a Disabled Woman

Almost always, sex is simply too much.

It’s too much expectation; too much pain; often just too much effort that leads to too much debilitating exhaustion; too much disappointment. I’m disabled you see, so it’s rare that sex isn’t too much. But it just as often brings too much joy; too much connection; too much divinity; too much glorious pleasure that leads to too much unbelievably soaring release. So, far too wonderful to lose. Thus, I will reach out to my partner with my broken, weakening body until I am just too, too, too totally unable to do so.

I LOVE sex. I believe and live a sex-positive life, having found a true connection with the Cosmic Creator through practicing Tantra in sexual unions. But, this has been a pretty tough year for me. I have Lupus, S.E., and it’s devastated a lot of my joints (I walk with two canes), and is now working on the ’ole noggin. I’m 53, but feel more like 93 a lot of time (and no, not the new 93 either!)

I’ve lived with the diagnosis a very long time, adjusting my sex life so that the positions required for success could be consistently met with a partner or during solo sex. Recently, that’s been more and more difficult. It may well be that I won’t be able to find a comfortable position at all some day – so I have to prepare for that horrible possibility.

You know, most disabled women and men never discuss their sex lives or sexual problems publicly or sadly, even in private. There is such an enormous layer of shame surrounding it, like it’s somehow our fault that our limbs won’t respond like a “normal,” able-bodied person. Like we’re filthy, unclean in the Biblical sense.

Recently, I looked through a bunch of free porn on the Internet. No, I’m not into it, although there’s nothing wrong with porn, and I actually surprised myself by finding some of it arousing. I had been looking for an image to copy and stylize for this blog when I ran into some very troubling information. It seems that if someone is in a wheelchair, or is otherwise visibly disabled and are depicted in porn, it is produced as “fetish sex.” FETISH SEX! In other words, not regular-people-porn. (I can’t believe I’m arguing we should be treated better by the porn industry, but I am.)

Here’s the dictionary definition of fetish: “The paraphilic focus in Fetishism involves the use of nonliving objects (the "fetish"). Among the more common fetish objects are women's underpants, bras, stockings, shoes, boots, or other wearing apparel. The person with Fetishism frequently masturbates while holding, rubbing, or smelling the fetish object or may ask the sexual partner to wear the object during their sexual encounters. Usually the fetish is required or strongly preferred for sexual excitement, and in its absence there may be erectile dysfunction in males…Usually the Paraphilia begins by adolescence, although the fetish may have been endowed with special significance earlier in childhood. Once established, Fetishism tends to be chronic.”

Obviously, fetish has also come to be used to denote any preference that has an erotic or sensual tinge to it, even if it isn’t part of a person’s traditional sex life. So someone who really loves shoes may describe themselves as having a shoe fetish. On the other hand, someone who likes to incorporate fur into their sex play may say they have fur fetish. Thus, someone who gets off by seeing someone in a wheelchair has a disabled-person fetish? Holy crap, as if life with a serious/fatal illness wasn’t rough enough already.

Everyone needs to feel good about themselves at least a little bit to be able to have sex, rotten self-esteem takes the steam out of the sizzle faster than anything else. So, when the porn industry throws us under the bus, too, it simply underscores just how the rest of society must see us, too.

I had already discovered that there are no sex aids for the disabled on the market – believe me, I’d looked everywhere. As a woman, a gadget that would help me reach would be great, or something to support my arms while I try to pleasure my partner, since my hands are unable to work long or well. Nothing, zip, nada. Soooooo, I have been forced to improvise, as I’m sure all other disabled people must, too.

In many ways, I’m lucky to be female since I don’t have to depend on holding an erection, which must be a nightmare for a lot of disabled guys. I’m also lucky because I orgasm easily and consistently – as long as the right areas can be comfortably reached, that is.

Does society really think we have no right to sex? That we are non-entities, sexless eunuchs who should stay in the background. We should know and keep our place. Above all, that we are not flesh and blood human beings with deep feelings, passionate desires, and strong sexual drives. Are you surprised to hear that we have just as many earthly needs as you have? That we have as much of a birthright to orgasm you. Or, does the real image of a disabled person deeply aroused or in full orgasm repulse you? Be brutally honest. The truth is it might even repulse you if you are disabled.

I assume that any erotica penned that involves a disabled person would be considered fetish sex, or even deviant sex. That’s too bad. We disabled know a lot about sex – we have to. We have to understand how our bodies, and yours, work to be able to have sex consistently and successfully. We know cool little – and sometimes big – tricks that you might really, really enjoy. We are also very patient, and are often forced to go nice and slow. We are generally sincerely considerate of your needs and pleasure, and very grateful for the kind, loving touches, kisses that we receive.

You see, when I have sex and the pleasure begins to build (inside or within my partner), I am no longer disabled. My body is no longer broken; I am suddenly floating free and unencumbered in the loving arms of endless, universal bliss. Is it any wonder that I do not – will not – give up this part of my life, and steadfastly refuse to apologize for it?

(FYI: The only really complete book on the subject that I've found helpful is
Ultimate Guide to Sex and Disability, by Miriam Kaufman, et. all.)

— The Curator